Existing at birth. The word "defect" is more accurate then "disease". There is NO known cause for CHD. It is the #1 defect that a child can be born with and occurs in about 1% of live births.
Subcategories 3
Related categories 2
Sites 14
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- Congenital Heart Disease Information and Resources Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals.
- Resources from California State University Very list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support.
- HLHS Information Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company.
- Adult Congenital Heart Association Information, resources and support for adults with congenital heart disease.
- CongenitalHeartDefects.com Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, list of support groups and hospitals.
- Fontan Operation Devoted to explaining this procedure, used to treat complex birth defects of the heart like hypoplastic right and left heart syndrome and single ventricle.
- Grown Up Congenital Heart Patients Association (GUCH) Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics such as pregnancy, insurance and careers, a message board and quarterly newsletter.
- Our Little Braveheart Jake was born with Tetralogy of Fallot. This is his story along with some pictures.
- Prenatal Diagnosis of Heart Problems UK site on the diagnosis of defects in the unborn child, prior to birth. Details timing of scans, high risk groups, diagrams of cardiac conditions, and includes support groups.
- MedicineNet: Congenital Heart Disease Detailed look at the causes, symptoms, types, and treatments.
- The Charlie Ramsey Research Fund Set up to raise money for research for complex congenital heart defects. Read Charlie's story, fund raising details, and new.
- Merck Manual: Congenital Cardiovascular Anomalies Overview of congenital anomalies of the heart and blood vessels with information on a number of different birth defects.
- CHD Awareness Day The Children's Health Information Network has brought global attention to the dreaded problem of Congenital Heart Defects by a co-ordinated effort from parents and families of CHD victims.
- Coping with Congenital Heart Disease in Your Baby Article with some useful information, published by The American Academy of Family Physicians.