These are online or physical communities or meeting places which provide information and support to members sharing a common experience such as a condition or disease, or a care-giving role. Message boards, mailing lists, chat rooms and moderated forums may be found here.
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- Yahoo Group: Interstitialcystitischronicpain This is an age restricted email support group which offers support and updated information when possible.
- Interstitial Cystitis Network - ICN Includes patient educational materials, support forum, live support chats, professional resources, newsletters, blogs, guest lectures and videocasts.
- Secret Suffering LLC This on-line community offers support for interstitial cystitis patients who struggle with pain during intimacy. Includes blog, radio and videocasts.