For information about Post Polio Syndrome (PPS) relating to the medical symptoms, health concerns, mental stress, or methods to help the individual deal with all aspects of Polio and Post Polio Syndrome. The term Post-Polio Syndrome is not universal. Some prefer Late Effects of Polio, Post-Polio Sequelae or Post-Polio Myopathy.
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Sites 16
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- Post-Polio Syndrome Central A listing of PPS [postpolio, post polio syndrome] internet resources, original papers, surveys and polls.
- Gazette International Networking Institute (GINI) Coordinator of International Polio Network (IPN) and International Ventilator Users Network (IVUN), collects, creates, and disseminates information for people with disabilities, specifically polio survivors and ventilator users. Information includes newsletters, directories, and books about independent living, home mechanical ventilation, and the late effects of poliomyelitis.
- Post-Polio-Med Email List Forum for researchers, medical professionals, polio survivors, and anyone interested in PPS: for research and treatment issues, conferences, support group meetings, and other related topics.
- PPS Related Events, Seminars and Conferences Calendar of non-commercial events concerning post-polio syndrome.
- Why PPS Is So Hard To Understand-Bollenbach 1999 Description of muscle types, muscles indirectly affected by PPS, how PPS differs from ALS, immune vs autoimmune.
- PPS Survey A survey for polio survivors with PPS
- How to Prevent Further Disability In Polio Survivors - Silver 1999 PPS expert lists things to do and not to do.
- Greater Boston Post-Polio Association Support and selected resources for polio survivors now experiencing the effects of post-polio syndrome, plus information on several Massachusetts PPS support groups.
- Post Polio Syndrome Forum A web discussion forum for people who have or think they have Post Polio Syndrome. A forum where all are welcome, and to share experiences pertaining to their PPS disability.
- New Jersey Polio Network Information and news of interest to polio survivors, their families, and the healthcare community. Links, local chapters, newsletter and conference updates, advocacy.
- San Diego Polio Survivors Support group. Profile, activities, membership, calendar, photographs, contact information.
- Post Polio Awareness Support Society Minnesota State wide group of Polio survivors organized to assist other survivors.
- Polio Survivors of the 21st Century Features a not for profit polio survivor website and support forum.
- British Polio Fellowship Information about this British PPS support group. PPS questions and answers, publications, library, news and message board.
- NINDS Post-Polio Syndrome Information Page Post-polio syndrome information page compiled by the National Institute of Neurological Disorders and Stroke.
- Saskatchewan Awareness of Post Polio Inc. Information on polio, post-polio syndrome, diagnosis, treatment, biographies, links to other resources, and equipment for the disabled.