A rare genetic disorder characterized by excessive physical growth during the first 2 to 3 years of life.
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- Sotos Syndrome Support Association of Canada Provides educational and emotional support, and current information. English and French.
- Sotos Syndrome Also known as cerebral gigantism, an information sheet compiled by NINDS.
- Sotos Syndrome Support Association Online community for the education of professionals and families and to exchange ideas, gather research and help families to cope. Quarterly newsletters, reference library, annual meetings, and conferences are available to members and professionals.
- Genetics Home Reference: Sotos Syndrome Includes a description and information on the genetics of this disorder, its inheritance and treatment, with links to other resources.
- GeneReviews: Sotos Syndrome Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.