Cystinosis is a rare genetic disease affecting both children and adults.
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- Cystinosis Research Network Information about the organization and their mission. Includes database about the disease as well as support groups, research and links to other resources.
- The Cystinosis Foundation UK Charity dedicated to assisting those with Cystinosis, their families, medical researchers and increasing the awareness of this condition.
- EyeRounds.org: Cystinosis Doctors Andrew Doan and Andrew Lee describe the diagnosis of a young girl with the condition. Features information on the epidemiology, signs, symptoms and prescribed treatment.
- Cornea and External Diseases - Cystinosis Features photographs of an affected eye, information on clinical features and treatment.
- Cystinosis Research Foundation Natalie's Wish is a non-profit organization. Their mission is to fund research to find better medications and ultimately a cure for this condition.