Ectodermal Dysplasia (ED) is not a single disorder, but a group of closely related conditions. More than 150 different syndromes have been identified. The Ectodermal Dysplasias are heritable conditions in which there are abnormalities of two or more ectodermal structures such as the hair, teeth, nails, sweat glands, cranial-facial structure, digits and other parts of the body.
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- The Andy Fund Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.
- National Foundation for Ectodermal Dysplasia ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
- Ectodermal Dysplasia Society Information about the organization as well as the ED condition. Includes links, news articles and contact details.
- NORD: Ectodermal Dysplasias Offers synonyms, a general discussion and resources.
- DermNet NZ: Ectodermal Dysplasia Factsheet from the New Zealand Dermatological Society.
- MedlinePlus: Ectodermal Dysplasia Factsheet with causes, symptoms, tests, treatment and prognosis.