Rare disorder concerning a congenital vascular malformation in the brain that usually leads to severe cardiac decompensation unless treated.
Sites 6
- Vein of Galen Malformation Support Group Support group from New Zealand with information on the disorder and medical presentation, links to articles and personal stories.
- Vein of Galen Malformation Article from the UCSF Children's Hospital on this congenital vascular malformation, diagnosis and treatment options.
- Vein of Galen Malformations Explanation from the Toronto Brain Vascular Malformation Study Group including an illustrative vascular angiogram, its diagnosis, and treatment.
- Vein of Galen Malformation Description of this vascular malformation by eMedicine.
- Glue injections help sick babies BBC News article featuring a mother of a toddler born with Vein of Galen malformation describing life-saving glue injections.
- Vein Of Galen UK parent support group providing information and resources on coping with Vein of Galen malformation.