These groups, communities, or meeting places provide an opportunity for people with a common experience (such as a condition or disease, or a care-giving role) to share their concerns, and to seek and offer information and advice.
Related categories 1
Sites 3
- Beckwith-Wiedemann Family Chat Forum An international email discussion group promoting the exchange of Beckwith-Wiedemann Syndrome (BWS) related information and support.
- The Beckwith-Wiedemann Children's Association of New Zealand Charitable organization focused on providing support and information for families affected by Beckwith-Wiedemann Syndrome in New Zealand and world wide.
- Beckwith-Wiedemann Syndrome Support Group UK group providing information on this condition, a letter from Dr Beckwith, stories, tips and details of new research.