Personal pages contain personal experiences of living with the disease. They may have other information as well.
Related categories 1
Sites 3
- Baby Jonathan's OI Page Site by parents of a child born with OI. Includes hints for parents of newborns, a log of their son's progress, and a page about a helmet he wore.
- Mona's OI Page A brief summary of Mona's experience, from birth until age 28. Basic information on OI, including a description of the 4 types. Links.
- Osteogenesis Imperfecta Organization. Parents' stories about finding out their children had the disorder. Some of them were accused of abusing their child.