Marfan Syndrome is an inherited disorder of connective tissue which affects many organ systems including the skeleton, lungs, eyes, heart and blood vessels.
Related categories 2
Sites 18
- National Marfan Foundation Providing accurate and timely information about the disorder to patients, family members and physicians.
- Canadian Marfan Association Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
- International Federation of Marfan Syndrome Organizations A global information center providing links to Organizations around the world.
- The Mystery of Akhenaten: Genetics or Aesthetics? A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
- The Marfan Syndrome A diary of the disease events in the life of someone with this condition. Includes a list of links.
- Marfan Syndrome: Does Diet Play a Role Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
- Living With Marfans This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
- Marfan Syndrome A guide to this connective tissue disease.
- South African Marfan Syndrome Organisation Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
- Marfans Research Foundation Irish charity with information on fund raising activities and the condition.
- Questions and Answers about Marfan Syndrome From the National Institutes of Health.
- Slovak Marfan Association The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
- NHS Choices: Marfan Syndrome Provides information on this inherited condition that affects the body's connective tissues. Includes details of symptoms, causes, diagnosis and treatment.
- Marfan Syndrome Article from eMedicine.
- The engineer who fixed his own heart and others too The BBC reports on Tal Golesworthy, who didn’t like the available treatments for Marfan, so did better.
- GeneReviews: Marfan Syndrome Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
- MFS Type 1 Fibrillin Gene Major resources listed as well as genetic information.
- Marfan Syndrome A Question-Answer format page of information.