These are online communities or meeting places which provide information and support to members sharing a common experience such as a condition or disease, or a care-giving role. Message boards, mailing lists, chat rooms and moderated forums may be found here.
Related categories 1
Sites 13
- MD-List Mailing list to provide support for people affected by all different forms of Muscular Dystrophy.
- Christians With Duchenne Muscular Dystrophy Mailing list for Christians who have Duchenne Muscular Dystrophy.
- DMD Support List Mailing list to provide support for people affected by Duchenne Muscular Dystrophy.
- Duchenne Muscular Dystrophy Support eGroup International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy.
- Dysferlin Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B.
- FSH Friends Forum Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy.
- FSH Muscular Dystrophy Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends.
- Limb Girdle Muscular Dystrophy Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy.
- MDA All the Way Discussion group where anyone affected by a neuromuscular disease can meet old friends and make new friends.
- Muscle Disease Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identified neuromuscular diseases.
- The Muscular Dystrophy Forum An online support group for people affected by any neuromuscular condition.
- Myotonic Dystrophy 2 Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it.
- PROMM (Proximal Myotonic Myopathy) Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation.