Spinal muscular atrophy is a term for a group of inherited neuromuscular diseases. All forms of the disease affect specialized nerve cells called motor neurons, which control the movement of voluntary muscles. SMA causes lower motor neurons in the base of the brain and the spinal cord to disintegrate, preventing them from delivering electrical and chemical signals that muscles depend on for normal function.
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Sites 9
- Families of SMA (Spinal Muscular Atrophy) International support group and resource center for this disease, includes current research.
- Elizabeth's Page Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
- Our SMA Angels Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
- Spinal Muscular Atrophy Foundation Information on SMA, and the latest updates in research, treatment and funding.
- SMA Support Inc. A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
- FightSMA Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.
- Tori's Buddies Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
- NHS Choices: Spinal Muscular Atrophy Provides information on this debilitating genetic condition. Includes a short video and details of symptoms, causes, diagnosis, treatment and prevention.
- Children gain independence with powered wheelchairs The BBC News reports on a company that makes child wheelchairs, and discusses the effect on children with spinal muscular atrophy.