Epidermolysis Bullosa is a genetic disorder characterized by a fragility of the epidermis or skin, causing blistering, scarring, and sometimes death.
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- DebRA of America Offers information, news, newsletters, support, and resources.
- EB Info World Information, mailing list, pictures, and help for new parents.
- DebRA UK Features organization background, information about the disorder, fundraising and research details, and news.
- EB Medical Research Foundation A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
- DebRA Canada Includes articles, news, and information about this genetic disorder.
- DebRA International Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.
- Yahoo! Groups: EBworld Mailing list support group for parents, patients, and those interested in learning about disease.
- Cristina's Castle in the Clouds Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.
- ‘Butterfly’ Churchill brothers die of infections The BBC reports on the death of two brothers with ‘butterfly skin’.
- The girl whose skin never heals The BBC reports on Sohana Collins, who has never known a day without pain. She has a rare genetic disorder that means her skin, internal and external, blisters and tears at the slightest friction.