Amyloid (pronounced am'-i-loyd) is an abnormal protein that may be deposited in any of your body's tissues or organs. This abnormal protein comes from cells in your bone marrow. The disease known as amyloidosis (pronounced am-i-loy-do'-sis) results when enough amyloid protein builds up in one or more organs to cause the organ(s) to malfunction. The heart, kidneys, nervous system and gastro-intestinal tract are most often affected. From the Mayo Clinic Rochester
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- Amyloidosis Support Network Provide complete, integrated, easy-to-reach support and information to existing information and referrals for other sources of help. Primarily for patients and their families struggling with the disease.
- Indiana University Amyloid Research and Treatment Center This site defines amyloidosis and describes current research as well as treatment options. It also introduces the personnel and facilities of the center.
- Symptoms of Amyloidosis Ask the doctor medical forum for patients hosted by Med Help. A brief look at this disease and the symptoms.
- Peripheral Neuropathy and Amyloidosis Ask the doctor medical forum for patients hosted by Med Help.
- NORD: Amyloidosis A list of alternative names and a general discussion about this disease.
- Amyloid Treatment and Research Program Contains information about the program, personnel, publications, how to send biopsy material, and how to get to the Boston Medical Center.
- Hunstein: EGCG Prof. Dr. Werner Hunstein provides information on his personal experience of treating AL amyloidosis with Epigallocatechin-gallat (EGCG) from green tea.
- MedicineNet: Amyloidosis Provides a definition of this condition, symptoms, diagnosis, and treatment.
- Amyloidosis Support Groups US based, non-profit organization; find out about ASG and its services including newsletters, patient and care giver resources, and fundraising events.