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- Von Hippel-Lindau Family Alliance Information about the organization and the disease. Includes FAQs, newsletter, handbook, meeting schedules and support group data. (Include links to Canadian, Dutch, Japanese and European branches) [English/Spanish/Portuguese/German/Danish/Dutch]
- Von Hippel-Lindau Disease Information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.