Cystic Fibrosis is an inherited disease of the exocrine glands, affecting the pancreas, respiratory system, and sweat glands. Usually beginning in infancy, it is characterized by chronic respiratory infections, pancreatic insufficiency, and susceptibility to heat prostration.
Cirrhosis of the liver, occurring in childhood, is common and may produce portal hypertension, splenomegaly, and hypersplenism.
Information found here includes research and testing; organizations involved in support, information or research; support groups; fundraising foundations and events; conferences, camps, and centers.
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- Cystic Fibrosis Resource Center Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
- The Breathing Room Guidance about the art of living with cystic fibrosis.
- CysticFibrosis.com Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
- Clayton Bates Cystic Fibrosis Support Site For family, friends, and other supporters to find out about the disease and offer support for Clayton.
- Cystic Fibrosis Western Australia Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
- YourLungHealth.org : Cystic Fibrosis Explains this complex disease, including symptoms, causes, diagnosis, current treatments, prevention, and links to additional information.
- Cystic Fibrosis Medicine Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
- MedlinePlus: Cystic Fibrosis A source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF.